Thursday, November 12, 2009

Our Supreme Fixer

“Heal me, O LORD, and I will be healed; save me and I will be saved, for you are the one I praise.” (Jer. 17:14NIV)

It’s raining leaves. Swirls of color drifting to the ground. Part of me enjoys this changing of the guard, this changing of the seasons. Part of me wants to take Elmer’s glue and paste everything back in place to hold off the coming winter.

I’ve been wanting to fix a lot of things lately. Not just the toilet that overflowed yesterday, but myself. Like the falling leaves, my body has been on a downward motion recently. More fatigue and more pain.

Thankfully, we have a Savior who understands. He came to fix us. Not necessarily to heal our physical bodies, although He does do that sometimes. He came to save us from ourselves, from sin, to reconcile us to Himself.

When I want the healing that just doesn’t come, I am reminded that in the most important way, I am healed. “Therefore, if anyone is in Christ, he is a new creation; the old has gone, the new has come!” (2 Cor. 5:17). I get not just a re-do, but a fresh beginning, with Him. I am spiritually healed.

He is our supreme fixer. No matter the season you are going through, He has a plan and a purpose for your life. He will take the falling parts of your life and mold them into a glorious tapestry. Some parts healed, others not.

Give it all to Him today. Let Him heal your brokenness.

Prayer: Father God, take our broken bodies and heal them according to what is best for Your glory and not our own. Give us the strength to hold up and thrive under great burdens. Amen.

ABOUT THE AUTHOR
Dana Kennedy is a survivor, encourager, wife and mother. She writes a devotional column for Glory and Strength e-magazine. Dana lives with postural orthostatic tachycardia, chronic fatigue syndrome, and fibromyalgia. Her dream is to spread God’s hope through her life and words. She and her family make their home in Liberty, Missouri. Please contact Dana at dtearosee@earthlink.net

Sunday, November 8, 2009

The Forgotten

Note: This post is NOT about gay men. This is one of my “deeper” posts so it’s longer. Read in sessions, but please read the entire post, because it’s a very important social issue that greatly affects me.

As a child, I always thought gay men were funny. My favorite movie was Too Wong Foo Thanks For Everything, Julie Newmar (1995). I didn’t understand why men would dress as women, but at age 9 I figured it was just a comedic part as clowns dress up at birthday parties. Little did I know that it represented a lifestyle. Fast forward to age 18 and you’ll find an Atlanta college student dating a DL brother who was a tad wobbly, and threw what I like to call “bitch fits,” but was still my world. After we broke up, I heard rumors he was hangin tight with the OUT and proud but I defended him (even though I wouldn’t be surprised). Five years later he came out to me. Surprise Surprise. I wasn’t shocked a bit. We became BFF’s.

Yea, I know that sounds super odd but our relationship was very pure. No sex, No fondling, No french kisses. I guess those shoulda been signs right?! Either way it worked itself out. During our BFF tenure, I saw inside the world of a gay man. A world where men become depressed because they constantly pray, asking God to “take away the gay.” Other men feel the urges, but aren’t ready to confront it so they sneak around like that Kill Bill chick watching her prey. The last bunch makes a conscious decision to own it. They are OUT and proud.

The funny think about people is, we want them to act how we think they should act. Homosexual simply means that you want to find love in a same sex relationship. Nothing more. Yet, if a homosexual black man who still acts like a MAN is OUT and proud….we don’t accept it in our minds. Those type of men don’t even come to mind when we think “gay.” When we vote on issues affecting homosexuals we do so with images of men with tiny shorts, smiles, and jazz hands flying through our heads.

[i promise this post isn't about gay men but i need to build it properly]

When any sort of legislature is passed that positively affects the LBGT community, it is done with….well images of Richard Simmons on a rope swing. Yet, if any legislature that blocks civil rights of the LBGT community it seems to be done with images of the Too Wong Foo pose in mind.

Never do we picture a John McCain type when we picture members of the LGBT community. In fact, people say: “Why can’t [they] be discreet. Why do [they] have to be so vocal? I’m not against gays, but Why can’t they be like that quiet gay couple down the street who keep to themselves and don’t go prancing around?”

It is apparent human nature to discriminate against only that which we can see AND makes us uncomfortable. Thus, it is the product of human nature to pass legislature revolving around those who fit the description of the apparent group being discriminated against (i.e the Richard Simmons & Too Wong Foo’s of the world). As a result, a percentage of the group being discriminated against, yet not belonging to the APPARENT group being discriminating against end up being discriminated against twice. Now that’s some bubble gum bullshit.

Let me put it into context for you: On the same night, two houses, each inhabited by a member of the LGT community, is vandalized. Both homes receive a paintball beating, are teepee’d, egged, and get hate messages spray painted on their garage doors. The only differing factor is the lifestyle of the household member.

Household #1 consists of two “Fraiser” like men. They are refined, love to attend operas, and host wine tasting parties. Household #2 is made up of 3 friends: A flamboyant male hair stylist, a female impersonator, and a stereotypical stud.

  • Which incident takes precedence on the 10 o’clock news?
  • Which household will generate the most press and will provoke more raw emotion?
  • Which family unit will generate a twitter trend topic?
  • Which story will the women on The View spend more time discussing?
  • Whose picture will get shown?

HOUSEHOLD #2….duhhh!!

What do you see?

It’s not rocket science. This is the symbol that typically denotes an area is reserved for the physically handicapped or disabled. You already knew that though. Our brains have been conditioned to associate a wheelchair with being disabled. Not just when looking for a good parking spot, but also when looking at people. A physically disabled person is someone in a wheelchair, with a cane or is missing a body part. A mentally disabled person is a person that has mental retardation or down syndrome. Pretty easy to spot.

Then there’s me.

I have fibromyalgia (www.fmaware.org). I am physically disabled, but not visibly disabled. While I may not require the same accommodations as a visibly disabled individual, by law, it is still required that you accommodate me in some way shape or form. So what’s the problem….

You tell me.

This disconnect seems to be based on the concept of truth. Since many of my symptoms are not visible and are not predictable as to when or on what level they will affect me, I am left with the burden of proof that they actually exist. Suddenly I’m fighting an invisible war where no one has the balls to come out and say…your lying. Instead I am told: “We cannot accommodate you because….”

  • Your symptoms are vague
  • Your symptoms are varied and are disconnected
  • I don’t understand what symptom x has to do with symptom y
  • We need more details on exactly when and how you are affected

To put this into context, the people telling me these things are my school, Rockhurst University located at 1100 Rockhurst Rd, Kansas City, MO 64110(feel free to send letters of protest and/or outrage). I apologize that I was not struck with a simpler syndrome. I am truly sorry I inconvenienced the university by picking the most complicated illness from the list of sicknesses I was presented with. Apparently, I must have arrived late and all the good stuff was already gone. Straight Bullshit.

I find it amusing and highly perplexing that people with no medical training (PhD) are placed in a position of power to discredit those with at least 10 years of medical training and another couple of decades of medical practice under their belts (M.D.) Straight Bullshit.

I refuse to let anyone tell me that this situation would play out the exact same way if I was visibly disabled. Straight Bullshit.

If you could see that I was visibly in severe pain, my absences would be excused (instead of “explained”). I would get the accommodations I require. In essence, they would know what to do with me. Instead they don’t and they choose not to figure it out. Rockhurst University seems to find it easier to suggest I attend another school. One that is “Less traditional.”—an online university. They even went as far as to offer me information about this new school. This means they would rather loose an excellent student who will turn into a great alumni, just because they refuse to accommodate an illness they have never seen. Straight bullshit.

This is discrimination in its purest, yet least recognizable form. I am discriminated against because the laws protecting those with disabilities were not written with me in mind. I am the forgotten. In LBGT terms, I am the quiet gay couple that keeps to themselves, but still cannot marry and will not cause an outpouring of outrage if I am discriminated against. They are just as gay as I am disabled. They chose to be gay the same day you chose to be straight. I chose to be disabled the same day you chose to be born healthy. Yet we are two groups who are ignored simply because we aren’t OUT and proud. We are not the apparent group, therefore we have trouble getting people to bestow upon us the same attention as they do the visible group.

Where does this leave me?

If I am to receive my share of my due rights, I must fit the mold of a disabled person. I must whip out my leopard cane, strap a back brace on, and turn into a Flamboyantly Disabled Individual. Regardless of whether or not I actually need these flamboyant accessories, It seems I’ve got to take notes from the Richard Simmons of the world and be Flamingly Disabled. Maybe then…..they’ll notice me.

I am the forgotten.

Saturday, November 7, 2009

Intro

I am Catherine, or catherinexcatastrophe (my other blog is catherinexcatastrophe.wordpress.com).  This is my wellness blog, where I’ll log all my health and well-being findings for you to ponder and maybe try out.

I care a lot about my health, but, like most of us, I don’t have the time to run miles every day or prepare fresh-cooked meals ALL THE TIME.  I’m a student looking for a “quick fix.”

Besides a student, I’m a singer, actress, and avid biker (among other things, such as activist, mediator, and go-to-man).  With my busy schedule, I figure I need to be healthy, right?  Easier said than done.

I’m embarking on a journey to better my health, one step at a time, which you can read about in my blog.  I’ll address a ton of topics, such as dyslexia and other learning disorders; Irlen’s syndrome (scotopic sensitivity); depression; anxiety; and other phsychological disorders; fibromyalgia and chronic fatigue; diet: what’s the best?; insomnia; autism; headaches; and more.

To start, I’d like to take a poll.  Please select whichever BEST describes you–it will help me a lot if you do this!

View This Poll
polling

Tuesday, November 3, 2009

Fit to Fat and Back Again or...

…How I lost My Mind and Decided to Reinvent Myself as a Fitness Instructor at the Age of 50 While Recovering From Fibromyalgia!

I find myself at the far end of middle age in nearly the worst shape of my life after having been sedentary for a couple of years. Pretty embarrassing, given I’ve been athletic and active for more than a couple of decades. This is a painfully honest look at how I got here, where I think I’m going, and where I eventually end up. It’s going to be an adventure, I hope you’ll come along for the ride!

Thursday, October 29, 2009

Joe Greer

If I were to dress up as a doctor for Halloween, perhaps I’d be Greer and add wings on my back.  Greer is an absolute angel.  He doesn’t just serve people with insurance, but he also takes in people who have nothing to offer him.  His services awarded him a “2009 Presidential Medal of Freedom, for his 25 years of dedication, at a White House ceremony with President Obama.”

I wish a person like Greer didn’t surprise me that he even exists.  I mean, who heard of such a thing, a doctor who got into the business for the right reasons?  I’m shocked!!

I’d rather not be shocked.  I’d rather be shocked when people don’t help others.  I’d rather be shocked that a crime was committed on the street and there was one person who didn’t try and help.

It is comforting though that someone like Greer is out there, and that he is teaching.  Maybe just maybe the world CAN become a better place and that health care for all is right around the corner.  :)

Sunday, October 25, 2009

It Isn't Easy Being Gigi

Ok… So we had our history lesson of me. Nice… Just what you wanted to know, huh? And you are probably asking why I would air my laundry out there about my health. I mean heck! I am violating my own HIPAA! You know, I am an educator. My name is Angela, it means messenger. No one knows what I will say next. But seriously, I am doing this because no one understands this disease, even the Drs. I have yet to go out and research it either. This has got to be the first time in my life that I have obeyed Drs. They tell me “No”, “You stay away from that Google search engine and that term Fibromyalgia.” I am getting a daily dose of hands on learning with this disease. To tell you the truth, I am scared. But you’ll never see it.

I love to laugh. I am sarcastic and love make others laugh. However, I have my game face on most of the time. There are only two people that see through my mask on a regular basis. But even they don’t understand. I don’t tell them all of it, anyone for that matter. It is inconceivable of how much pain I feel and I cannot put it into words. I am mentally in a perpetual screaming or crying match. Have you seen that painting “The Scream” by Edvard Munch? I can relate. Only God  knows how I stay sane. He must be carrying me throughout the day while I do what I gotta do. It is also very disgusting to whine, so I don’t. The meds take the edge off, but don’t eliminate everything. And there are side effects. To which you have to add another pill for that and then the process goes on and on. At my last appt. I told my Dr. I wanted off my meds. Yes… I know. Why would I knowingly put myself in full fledged pain? Because I have been in full fledged pain for 12 years without meds and my body functions worked normally. If you are not grasping my meaning, I am referring to the digestive area. It’s gone kaput.  Of course the Dr. disagreed with me and out me on a different medication. Joy!

“Topamax”, he says… “will allow your body to work normally and you’ll lose some weight. Some common side effects are tingling, short term memory loss, hot flashes with sweating… and you may forget what you are saying at times”

I said, “Jeez… so I am going to have a romance and not remember it?

For those of you that don’t know, Topamax is affectionately called the “stupid pill”. I feel stupider every day. Just sayin’.

- Gigi

The Joy of Comfortable Sex: A Guide for Couples with Back or Neck Pain by Dr. Pierre Angier

If you suffer from chronic pain, you are not alone. Over 50 million people in the United States suffer from persistent back or neck pain. It is no surprise that most of them report that their pain significantly affects their sex lives. If you are one of those 50 million, we can help. The Joy of Comfortable Sex: A Guide for Couples with Back or Neck Pain by Dr. Pierre Angier provides you with the resources you need to reduce or eliminate your pain and start leading a healthier, happier life.

In this book you will learn:

  • Effective strategies to manage or eliminate your pain;
  • Sexual techniques and positions to use even when you’re hurting;
  • Alternatives to intercourse that you’ll both love;
  • Communication skills that will help you become a great lover;
  • Easy ways to keep sex interesting and fun.

The Joy of Comfortable Sex also includes special sections on fibromyalgia, TMJ, and non-surgical treatment options for herniated discs. Photos of stabilization exercises and illustrations of comfortable sex positions are placed throughout the book.

Order your copy today through Excelsior Books, LLC  (click here to add to shopping cart).  Enter coupon code blog10 to receive 10% off the book price.

Or ,if you prefer, click here to buy from Amazon.com .